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Local News

Manley bill aims to protect private consumer information

State Rep. Natalie Manley, D-Joliet, speaks to a crowd of local officials and business leaders Friday, March 22, 2019, during a groundbreaking ceremony for Rock Run Crossing in Joliet, Ill.
State Rep. Natalie Manley, D-Joliet, speaks to a crowd of local officials and business leaders Friday, March 22, 2019, during a groundbreaking ceremony for Rock Run Crossing in Joliet, Ill.

State Rep. Natalie Manley, D-Joliet, sponsored a bill aiming to protect private consumer information that recently passed the Illinois House of Representatives.

The Genetic Information Privacy Act, or House Bill 2189, would explicitly prohibit ancestry and genetic testing companies from releasing information about a consumer to any health or life insurance agency without the consumer’s consent, according to a news release. Genetic testing companies such as Ancestry.com and 23andMe have become more popular.

“Currently there are no protections prohibiting insurance companies from accessing data from genetic testing,” Manley said. “My legislation protects consumers’ private genetic information to prevent it from being used against them by life insurance companies, to deny them or hike their rates.”

The bill passed the House with unanimous bipartisan support and will move to the Senate for consideration.

“My legislation puts people first,” Manley said.

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