The National Organization for Rare Disorders calls Erdheim-Chester disease (ECD) a rare multisystem disorder of adulthood.
The cause is unknown.
Brian Trusty of New Lenox was diagnosed with it 2012. And in March, right before the COVID-19 pandemic began, he released a book about his battle with it, from symptoms to diagnosis to living his life with it.
The book's Amazon description has just one line: "A story of how a once healthy man came down with a terminal disease and how he is beating it."
It's this book I'll be reviewing in Tuesday's LocalLit newsletter.
As Trusty wrote in the introduction. "I simply want to discuss my ride before and enduring my illness with Erdheim-Chester Disease and how I continue to defeat it. I still have much to live for and I do not quit, that is the biggest key. This disease is mind numbing, sometimes symptoms are hard to see."
But this will not be a bleak read.
Trusty also wrote, "I refuse to have bad days and I have a smile for everyone I meet."
Know more about LocalLit
Each week LocalLit will deliver an original short and family-friendly story (or a book review) by a local author to the newsletter's subscribers.
Authors with a connection to our readership area may submit. Submission does not guarantee acceptance.
Contact Denise M. Baran-Unland at 815-280-4122 email@example.com.
To sign up for the free LocalLit newsletter, visittheherald-news.com/newsletter/locallit/#//.